The Tipping Point- When to take the next step with Meds

I am at a crossroads concerning my medications at this point. As I had mentioned in my first post, I am looking at immunosuppressant therapy as my next option as the initial treatments have all failed thus far. I have really been postponing starting these medications because of the negative side effects associated with them.
When I approached the one and only Behcet's specialist at the NYU Langone Medical Center, Dr. Yusuf Yazici, about my fears, he made a valid point. Why wait until the damage on my body is irreparable to start the next steps of treatment? We know it is worsening and we should act accordingly and not let it strengthen anymore.
I feel like I have been telling myself I am not THAT bad yet, I can wait it out and see if I improve naturally with what I am doing now for so long... I think a big part of it is also, what if this also fails... then what?

I am so tired of failure being associated to me.
What will my tipping point be? When will I be ready to take the chance to possibly save my health or ruin it even more? I can't say I have that answer yet.