I've finally started Imuran (Azathioprine) which is an immunosuppressant treatment to help deal with my Behcet's disease. Initially I was terrified to start it because it shuts off part of the immune system and makes you susceptible to all kinds of illnesses and cancers later on in life. I have also heard so many horror stories about this drug, I am really hoping I am not going to be sharing any of those with you any time soon! So far, I've experienced a terrible taste and some stomach issues but other than that, so far so good. I think it takes a few weeks to see the full results.
Last night, while lying awake in the dark, I grabbed my bf's hand and asked him to think of a little prayer that this will be the med that works and to transfer good vibes over to me. I NEVER do this.
Also, when I picked up my meds, there was a new pharmacist there who was asking me about my disease, obviously never heard of it, and spent a ton of time questioning me, making sure there were no interactions with my other meds, making sure I was ok.. it was very odd because usually they just fill the prescription and send me off. She told me this medication was wonderful and I would be ok soon..
I am more of a spiritual person than a religious one, and I like to look for signs in life. I took her caring about me and her reassurance as a sign. Let's hope this is the one after two years of struggles!
This doesn't have anything to do with this blog entry. I wanted to respond to your comment on Instagram but once again I wrote waaay too much...I often have that problem. I don't have your email so this is the easiest way. You can delete it after you read it since it doesn't apply to this entry.
ReplyDelete@instantclas_sick Thank you so much for responding. It means so much to me that you took the time to open up and tell me so much. I know we all can relate to each other, but just knowing that there is one person out there who lives a life so much like mine makes me feel less alone. There are a few people I go to and try to talk about what I'm going through and they just don't want to listen anymore. They don't understand and think I'm being ridiculous and worrying too much. I'm concerned about what's going on with my body, I'm not freaking out or constantly worrying that I'll suddenly drop over dead. I also know that other people really can't understand or know what it feels like to have these diseases but they could at least show some empathy. My boyfriend is the only person who takes the time to listen and show true empathy. He listens without judging or telling me what to do. But unfortunately my damn illness has put the life we want to start together on hold. He's living 5 hours away right now and it's hard to plan when I don't quite know what's going to happen next. So here I am, stuck in a cluster f*ck living with parents...and my dog who is basically my only companion. Sorry to keep rambling on about everything again. I'm very disappointed with what healthcare in the United States is like now. And it doesn't even have anything to do with how unaffordable it is for so many people. Quality care is becoming so rare..I can hardly trust doctors anymore. They seem so lazy and/or uneducated, or they just don't give a crap about a persons quality of life. You seem to be getting so much better healthcare in Canada and it's basically free, right. I had an argument with my mom the other day how people in Canada get better healthcare than we do now. She was telling me I was being ridiculous and how Canada has socialized healthcare, people come here to get better care and treatment, etc. At least people who suffer from chronic pain aren't denied or have to go through a difficult process to get effective pain killers. Okay, I'll end this rambling rant now.
Hey sweetie! It actually takes 6 months to reach the full potential of Imuran....u wont know if it works well enough for ya until then :)
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